Indo US Organization for Rare Diseases

The Indo U.S. Organization for Rare Diseases (IndoUSrare) is a dedicated independent non-profit organization that supports individuals affected by rare and underserved medical conditions of Indian origin across the USA, India, and globally. By fostering collaborations among researchers, healthcare providers, and patient communities, IndoUSrare aims to enhance the development of diagnostics and therapies through comprehensive education, advocacy, research, and grant programs. Our mission emphasizes patient-centric initiatives in alignment with the FDA's patient-focused drug development (PFDD) paradigm, including the Diversity Patients Alliance Program, tech-enabled Patients Concierge, Corporate Diversity Advisory Council (CDAC), research programs, and national and international conferences, ensuring extensive support and engagement for affected individuals.